The PCD Registry

Welcome to the international registry for Primary Ciliary Dyskinesia (PCD). PCD is a rare disorder of mucociliary clearance caused by defective hair like organelles (cilia). The purpose of the PCD Patient Registry is to measure, survey and compare different aspects of PCD manifestation, course and treatment, to provide data for epidemiological research and to identify special patient groups suitable for multi-centre trials.

Heymut Omran
(For ERN-LUNG PCD-Core)

PCDregistry.eu@ukmuenster.de

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